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Parents of Infants With Cystic Fibrosis Often Feel Confused, Unsupported: Survey

Parents of newborns diagnosed with cystic fibrosis often are confused about both the disease and their next steps, a new national survey has found.

In fact, about half of new parents don't even know that newborns are routinely screened for the genetic disorder, the poll found.

This confusion can lead to a delay in treatment that will have long-term consequences for a child's health,...

Cystic Fibrosis Screening Often Misses Black, Hispanic Babies

While early diagnosis of cystic fibrosis can prevent permanent lung damage, newborn screening often looks only for genetic mutations more common in white people than those found in people of color, a new study finds.

"Newborn screenings are meant to be a public health measure that is equal across populations, but in practice, we are actually creating disparities because children of color ...

Vitamin Supplements May Help People With Cystic Fibrosis

More than 160,000 people around the world have cystic fibrosis, and supplementing with vitamins C and E could help reduce the damaging inflammation in their lungs, according to new research.

"Cystic fibrosis is a genetic disease that is associated with increased inflammation, and like many inflammatory diseases, it comes with a large amount of

  • By Cara Murez HealthDay Reporter
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  • October 3, 2022
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  • Full Page
  • Race Plays Role in How Soon Babies With Cystic Fibrosis Get Care

    Babies who are white appear to get diagnostic appointments for cystic fibrosis earlier than babies of several other races and ethnicities, new research shows.

    This can cause gaps in care and outcomes.

    While it is recommended that infants who have an initial positive screening for cystic fibrosis be furt...

    Out-of-Network Costs Raise Medical Bills for Special Needs Kids

    Special needs children often require out-of-network care from specialists, which means more out-of-pocket costs and extra stress for families, a new study finds.

    "In the U.S., the reality is that the more health care needs you have, especially from specialists, the greater chance you will find your needs won't be met, even if you have private insurance coverage," said lead author Wendy Xu...

    Research May Help Focus Treatment for Kids With Cystic Fibrosis

    Hundreds of new proteins that may be linked to cystic fibrosis have been identified by researchers and could point the way to better treatments for people with the genetic disease.

    There is no cure for cystic fibrosis,...

    Drug Trio Could Give Patients With Cystic Fibrosis a New Option

    A three-drug combo that significantly improves lung function in cystic fibrosis patients could benefit 90% of people with the life-threatening disease, a new study suggests.

    It included patients with a single copy of the most common genetic mutation for the disease.

    Results of the international phase 3 clinical trial led the U.S. Food and Drug Administration to approve ...

    FDA Approves New Drug for Most Common Form of Cystic Fibrosis

    A new drug to treat most cystic fibrosis patients has been approved by the U.S. Food and Drug Administration.

    Trikafta (elexacaftor/ivacaftor/tezacaftor) is the first triple combination therapy available to treat patients with the most common cystic fibrosis mutation. Its list price is $311,000 a year, same as one of the maker's earlier treatments for the genetic disease.


    An Antibiotic Alternative? Using a Virus to Fight Bacteria

    Viruses and bacteria are the culprits behind the infectious diseases that plague humans. Researchers recently turned one against the other, using viruses to wipe out a potentially life-threatening bacterium in a 15-year-old girl with cystic fibrosis.

    This old-time approach to battling bacterial infections might be worth another look in these days of antibiotic-resistant bacteria, a ne...